Saturday, December 25, 2010
Friday, December 24, 2010
Wednesday, December 22, 2010
He did have to come and check in after every lap though.And Jacob was amazing. We didn't go out on the ice with him just to see what he would do. He spent a little bit of time clinging to the wall but not after too long, he was able to make it around most of the rink with out holding on. It was pretty cool how fast he picked it up.
Monday, December 20, 2010
I have learned a lot about myself and life in general because of this chair. You see, I willing go to this place, sit down with a smile on my face and let someone else put poison into my body in order to make me better. This seems so counter intuitive to me but I know in the end it is what I need to do.
My view isn't the greatest but it works for me. There is a large 60" flat screen TV that always has some sort of noise on. (First come first serve on the remote so you never know what you're going to get.) The other reason I like this chair is I can see the doorway. I can be nosey as to what doctors are walking by. You see when I was in the ICU, I probably saw every specialist in the hospital and I find it kind of cool to see them walk by in a different setting. Often times, they stop by to see me as well and see how I am doing. I have a special connection to all of these doctors and they all hold a special place in my heart for all of the hard work and compassion they put into my care.
I'm usually in my chair for about 3 1/2 hours each time. It doesn't take that long for the chemotherapy to be infused but there is a process. When I first arrive, the nurse cleans my port to prepare for chemo as well as draw some labs that are drawn each time. Once she draws the blood, I have to then wait for the results before they start with the chemotherapy. If certain levels are too low, they cannot give the chemotherapy and they are also looking at certain levels that might require a blood transfusion. This is common with chemotherapy. i have not had to deal with any of this yet. While I am waiting for the labs to come back, I usually see my hematologist/oncologist just to say hey and check in as far as treatment. Once done with that, I head back to the chemo lab so they can give me an IV bag of fluid as prehydration. By the time this bag is done, the labs are back and it is time for the chemo drug. I have been asked what it feels like and I can honestly say, it isn't as bad as I expected but it does compare to "flu in a bag" if I have to find a description. As it infuses, I start to feel a little nauseous and my joints get achy and I just feel blah but otherwise not too horrible. (It usually gets worse through the rest of the day and the next but I have drugs that help a lot.)
Once the chemo drug is in (which usually takes 45 minutes), they give me another bag of fluids but this one goes quick. As soon as this is done, it is a quick unhook from the IV pump and a "see you next time."
(I'm not a big fan of having pictures taken of myself these days as I see the side effects of the drugs but I also figure this is part of my life now so I should embrace it. The big round chipmunk cheeks and dark circles under my eyes are a result of high doses of steroids. You can't see the distended belly but it's there and that too is from the steroids. The yellow thing in the upper left hand corner is the needle that is placed into my port. Normally I see a pale purple lump just under my collar bone. As much as this makes life so much easier because I don't have to have needle sticks any more, it is a constant reminder of what I am now living with. I guess looking in the mirror now has just taken on a new meaning for me.)
I am not the only one that sits in this chair on these days. I have always had things with me from all of the special people in my life - drawings from the kids, earrings from my mom, a bracelet from my mother in law, a bag from my very first race I ran and of course Mike sitting in the chair next to me. My newest addition is my quilt from my very special 07B Bond Girls. These things make this process so much easier. To know I am surrounded by such love, compassion and support is sometime overwhelming but always reassuring when I am having doubts or moments of weakness.
For now, I will be happy with my chair and take the time that I sit in it as a blessing. To have the option of a treatment sure beats the alternative. So, I give you my chair...
Saturday, December 18, 2010
After we dropped off the toys, we headed over to see the big in the red suit. Each one of them went up there one by one and had a pretty in depth conversation about their desires this year. Elizabeth told him she wanted a new bike and a DQ Blizzard maker. AJ wanted a new Nerf gun and Jacob well I'm not sure what he asked for but I'm sure it had something to do with cars. Just a hunch.
And of course I had to get the obligatory all kid pile on Santa's lap picture.
Sunday, December 5, 2010
Saturday, December 4, 2010
We were able to show up right as the parade was starting and get a spot just in time not to miss any of the floats. Gotta love not waiting around. AJ figured out really quick that the louder he yelled "Merry Christmas", the better his odds were at getting some candy thrown at him. They made out like little bandits.
The kids were enamoured by the bands that went by.
Tuesday, November 23, 2010
Unfortunately, I was unable to go this year to being neutropenic at the time but thank goodness for cameras. Mike was able to make it and take some video and pictures for me.
I think Jacob must have had a little stage fright from the looks of things but in the end, he said he had a lot of fun and is still singing the songs for me.
These are the things I am thankful for!
Saturday, November 20, 2010
I am so grateful I was able to be there for this fun game!
Tuesday, November 16, 2010
Jacob had quite the day. He has been talking about having a "Diego Birthday" for months now. So with that in mind, I hired a wonderful lady to come into his classroom and present some "exotic" animals and teach the kids about animal care and rescue. It was Nonie's Ark Animal Encounters. Jacob was excited to tell me about the snake, tarantula, cockroach, bird and more. The kids were able to interact with the animals and had some cupcakes.
Then he was swooped up by neighbors and family and taken to McDonald's for an impromptu party where we was able to play and have some fun with his friends. I am so thankful that everyone took him under their wings and made his day so special. Now just to get home to him and give him that special birthday hug from Mommy.